Timeline Part 4

Since I was diagnosed with UC, I didn't know how it would shaped my world because at first I was just taking Mesalazine enema for once per day and it was ok. No more harsh diarrhea and it was ok I guess. I thought this isn't so bad. So everything was fine up until I got back from Malaysia. I started to bled again so the doctor here advised me to take a form of steroid,Budesonid. According to my doctor it has practically a really little side effects than other steroids that is used to treat my condition. Although, the relativeness of little side effects than is quite big actually. I'll post the side effects that I am having afterwards. My UC has been in an on and off situation. Sometimes it just bleed like I drank blood for dinner and sometimes I am like a normal person but that is a rare occasion. Since then I am taking 3 tablets of Budesonid and a daily dosage of enema. Enema isn't fun. Trust me. Seriously. I just don't understand how some people are into these type of things. Last year my UC started to "heal", so the doctor prescribed me with a lesser dosage of steroids and enema. That was really cool. The side effects are less and life was good, but last 2-3 months my UC started to flare again. This time(and unfortunately till now) I bled when I go to the toilet. It isn't fun and I started having the need to go to the toilet in the middle of the night. Sometimes 2-3 times and that just kills the mood to sleep.In the morning, I got panda eyes and started being cranky and grumpy. Seriously in the past 2-3 months , I think I got only less than 7 times of a good sleep.

So this the the end up until now. I will post about other complications that I got from UC or the side effects from the medications.

Timeline Part 3

Proceeding the story. I was in Malaysia and I still got blood in my stool. I hate it. I always need to find a toilet after eating, it was excruciating. Sometimes during the process of eating, I need to go to the toilet. So I went to see a doctor at a clinic. It was first diagnosed as somewhat they called Traveler’s diarrhea but they pills they gave didn’t do anything at all. They suspected the worst , colon cancer, and they asked me to go to the hospital as fast as I can. So I went to a private hospital and they said they need some blood and stool sample, but they couldn’t process the sample as fast as some top hospital so they forwarded me to PUSRAWI. It was fast and easy. The first time experience preparing for colonoscopy was surprisingly painful and very tiring. Really it is, it’s like fasting(puasa) but for 3-4 days without breaking(bukak puasa) it. Then after the procedure and all. I went to the hospital a week after that for the explanation, I didn’t really understand the degree of my illness. Seriously I thought I just need to go to the toilet more and no more problems and there’s like some medicine to control the bowel movement. And I thought, OK that is all. I went back home even smiling. I really don’t know. The doctor said it is an autoimmune disease and the cause is unknown. The thing that changed your life and there is no hint on what is the cause. I was not satisfied actually and the best answer the doctor said “Your just unlucky”. I don’t blame the doctor after I joined some forums that I’ll update it later. I forgot to update that the medicine that I took costs a lot of money. It is expensive. It was shocking and I think it was around 600MYR and another 2000MYR for the colonoscopy. I paid half and my mother paid for the other half. For a student, 2000+MYR is expensive unless my parents are rich people. Unfortunately, they aren’t.

to be continue..

Timeline Part 2

Like I was saying in the previous post. Around that time, I was very focused on my studies. I thought the blood in my stool was temporary and nothing to be worried about. Every time I ate something in just half an hour , I must find the nearest toilet. Little that I know, this was the early symptoms. I remembered that I thought this was just a minor setback so I’d go to the doctor after the exam. But as my exam getting nearer, I was quite worried of the blood in my stool. It didn’t went away as I hoped. There is more and more blood sometimes. So I started calling my ex-classmate who is studying medic and now is a doctor. He said probably nothing to be worried about but I just need to see a doctor in any case. I procrastinated. Well I was too focused on the exams. That exam was vital. Well maybe not as vital as my life , but who would know the disease that I suffer from. My family never got it. And I never had heard from it anyway. Plus I was so excited to see my old friends and family. It was a very energetic semester. I entered gym, I study like hell, I was looking forward to fly back home, I got some money and would go for shopping and maybe a girlfriend. You know the stuff you wished for and finally I thought I had the courage to do it. After the exam I got a week before my flight, so nothing to be worried about. Everything was OK, just that I got very eccentric bowel movement. I thought everything was going to be OK or at least , I didn’t expect this going to happen. Really, this just blows up my mind.

to be continue

Timeline Part 1

I want to tell you about my life. I will hopefully be blogging this anonymously. About two years ago, exactly around this time, I was studying just to pass a difficult exam. I am not that talented in programming. Seriously, I am very slow at it. I need to pass this exam to stay in school and received a scholarship from a government agency. I was so focused on the subject and need to pass a few other papers. I remembered that summer was the first summer that I’ll be flying back home. I wanted to meet all my old friends back. There was so much to look forward to. So many things to experienced. I even signed up to join a gym to get my weight back down. I wanted to get a girlfriend, I really do. Life so boring when all your friends has a significant other. It’s just not the same when going out in couples and you’re single.It’s not about you want to like your friends, it’s just that I think it was time I started seeing somebody or having a relationship. I wanted to do many things. Seriously I wanted my life to be something. For the first time in my life , I am a positively motivated. I took chances. I even went running on a treadmill 3 times a week looking like elephant in sweaty clothes. About 2 months before the exam I stopped going to the gym, I focused more on my studies. At least my weight went from 88+ kg to 76 kg. I was happy for myself. This is about the same time I found there’s blood in my stool.

to be continued.